42 U.S.C. § 244b: Activities relating to cardiomyopathy

The natural history of individuals with cardiomyopathy, in both the pediatric and adult population. Estimates of cardiomyopathy-related emergency department visits and hospitalizations, in both the pediatric and adult population. Subject to paragraph (3), the report submitted under this subsection shall be made available to the public. The Secretary shall ensure that this subsection is carried out in a manner that complies with all applicable privacy laws under Federal and State law. Background information on the prevalence, incidence, and health impact of cardiomyopathy, including all forms of cardiomyopathy and their effects on pediatric, adolescent, and adult individuals. A worksheet with variables and conditions for an individual or health care provider to use in assessing whether an individual is at risk for cardiomyopathy. A worksheet with variables and stages of progression for an individual or health care provider to use in assessing whether and to what extent cardiomyopathy has progressed in an individual. Guidelines on cardiomyopathy screenings for individuals who are at risk for, or have a family history of, cardiomyopathy. representatives from national patient advocacy organizations expert in all forms of cardiomyopathy; representatives from medical professional societies that specialize in the care of adults and pediatrics with cardiomyopathy; and representatives from other relevant Federal agencies. In this section, the term “cardiomyopathy” has the meaning given to such term in section 244a of this title .